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Race For 7

Rare disease in India: An interview with Prasanna Shirol

On the heels of the Race for 7 event in Bengaluru, co-founder and director of the Organisation for Rare Diseases India (ORDI), Prasanna Shirol spoke to Health Issues India to offer his insight into the myriad of issues facing those suffering from rare diseases within the country in an exclusive interview. Thank you for agreeing …

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Rare disease: Children race for awareness

An event taking place in Bengaluru has aimed to raise awareness for rare disease, a problem affecting a vast number of Indians, yet is almost entirely swept under the rug – both in the public discourse and the formulation of government policy. Rare diseases — despite the uncommonness that the name infers — cumulatively affect …

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