Rare diseases, despite the rarity the term implies, are a life-changing and, unfortunately, life-ending issue for millions of people across the globe. Despite this they are among the most neglected diseases affecting humanity. A key component of the neglect for these conditions is due to the misconception regarding the sheer number of those affected. While […]
ORDI
Rare disease in India: An interview with Prasanna Shirol
On the heels of the Race for 7 event in Bengaluru, co-founder and director of the Organisation for Rare Diseases India (ORDI), Prasanna Shirol spoke to Health Issues India to offer his insight into the myriad of issues facing those suffering from rare diseases within the country in an exclusive interview. Thank you for agreeing […]